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	<title>Comments for Ellyn Davidson's Weblog</title>
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	<link>http://ellyndavidson.wordpress.com</link>
	<description>Just another WordPress.com weblog</description>
	<lastBuildDate>Mon, 19 Oct 2009 16:33:13 +0000</lastBuildDate>
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		<title>Comment on Raising Awareness of Hereditary Cancer by ellynd</title>
		<link>http://ellyndavidson.wordpress.com/2009/10/18/raising-awareness-of-hereditary-cancer/#comment-337</link>
		<dc:creator>ellynd</dc:creator>
		<pubDate>Mon, 19 Oct 2009 16:33:13 +0000</pubDate>
		<guid isPermaLink="false">http://ellyndavidson.wordpress.com/?p=658#comment-337</guid>
		<description>Thanks for your comments and suggestions and thanks Steph for posting the article.  It illustrates exactly why we need to create awareness on a much broader level.</description>
		<content:encoded><![CDATA[<p>Thanks for your comments and suggestions and thanks Steph for posting the article.  It illustrates exactly why we need to create awareness on a much broader level.</p>
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		<title>Comment on Raising Awareness of Hereditary Cancer by Steph H</title>
		<link>http://ellyndavidson.wordpress.com/2009/10/18/raising-awareness-of-hereditary-cancer/#comment-336</link>
		<dc:creator>Steph H</dc:creator>
		<pubDate>Mon, 19 Oct 2009 16:01:11 +0000</pubDate>
		<guid isPermaLink="false">http://ellyndavidson.wordpress.com/?p=658#comment-336</guid>
		<description>I don&#039;t have any suggestion, just wanted to share this piece in Newsweek: http://www.newsweek.com/id/218243

It really affected me. Here is a woman who is told she is &quot;too young&quot; to have breast cancer and turns out to be at stage IV. She&#039;s a BRCA gene carrier, but it sounds like she wasn&#039;t tested until later in the process. If she had known her status, would her doctors have taken her more seriously earlier on? It&#039;s just devastating to realize how much education is still needed -- especially in the medical community.</description>
		<content:encoded><![CDATA[<p>I don&#8217;t have any suggestion, just wanted to share this piece in Newsweek: <a href="http://www.newsweek.com/id/218243" rel="nofollow">http://www.newsweek.com/id/218243</a></p>
<p>It really affected me. Here is a woman who is told she is &#8220;too young&#8221; to have breast cancer and turns out to be at stage IV. She&#8217;s a BRCA gene carrier, but it sounds like she wasn&#8217;t tested until later in the process. If she had known her status, would her doctors have taken her more seriously earlier on? It&#8217;s just devastating to realize how much education is still needed &#8212; especially in the medical community.</p>
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		<title>Comment on Raising Awareness of Hereditary Cancer by Cindy Birkhold</title>
		<link>http://ellyndavidson.wordpress.com/2009/10/18/raising-awareness-of-hereditary-cancer/#comment-335</link>
		<dc:creator>Cindy Birkhold</dc:creator>
		<pubDate>Sun, 18 Oct 2009 22:18:43 +0000</pubDate>
		<guid isPermaLink="false">http://ellyndavidson.wordpress.com/?p=658#comment-335</guid>
		<description>I am BRCA2, and Sarasota Outreach Coordinator for FORCE.  I am starting a non profit to raise awareness and educate about heriditary breast and ovarian cancer.  Part of our services will also be funding for genetic counseling and testing. Maybe we could set up the same type event in several cities at the same time.  I would also like to put together a book or something with stories of the journey from different women after they learn they are BRCA+.  I also think we need to make more men aware that this affects them also.</description>
		<content:encoded><![CDATA[<p>I am BRCA2, and Sarasota Outreach Coordinator for FORCE.  I am starting a non profit to raise awareness and educate about heriditary breast and ovarian cancer.  Part of our services will also be funding for genetic counseling and testing. Maybe we could set up the same type event in several cities at the same time.  I would also like to put together a book or something with stories of the journey from different women after they learn they are BRCA+.  I also think we need to make more men aware that this affects them also.</p>
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		<title>Comment on Raising Awareness of Hereditary Cancer by Sharon Stanley</title>
		<link>http://ellyndavidson.wordpress.com/2009/10/18/raising-awareness-of-hereditary-cancer/#comment-334</link>
		<dc:creator>Sharon Stanley</dc:creator>
		<pubDate>Sun, 18 Oct 2009 15:24:00 +0000</pubDate>
		<guid isPermaLink="false">http://ellyndavidson.wordpress.com/?p=658#comment-334</guid>
		<description>Hi Ellyn,
I am in the reconstruction process.  I am brca 1 and I had my prophylactic bilateral mastectomy on June 10.   This Wed I will have my exchange surgery.

This has been a lonely journey.  Most people have never heard of the gene mutation and many people are horrified (as I was) at having unnecessary surgery.  FORCE was a wonderful resource, but I believe that more people need to know about this.  I think a huge publicity event would be a great way to do it.  

I belong to the Ethical Humanist Society of Long Island and I am a board trustee, which means I can rent this building for an inexpensive rate.  The building can hold 300 people.  I wonder if there might be a group that might want to join me in this endeavor.   Thanks for posting!</description>
		<content:encoded><![CDATA[<p>Hi Ellyn,<br />
I am in the reconstruction process.  I am brca 1 and I had my prophylactic bilateral mastectomy on June 10.   This Wed I will have my exchange surgery.</p>
<p>This has been a lonely journey.  Most people have never heard of the gene mutation and many people are horrified (as I was) at having unnecessary surgery.  FORCE was a wonderful resource, but I believe that more people need to know about this.  I think a huge publicity event would be a great way to do it.  </p>
<p>I belong to the Ethical Humanist Society of Long Island and I am a board trustee, which means I can rent this building for an inexpensive rate.  The building can hold 300 people.  I wonder if there might be a group that might want to join me in this endeavor.   Thanks for posting!</p>
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		<title>Comment on Raising Awareness of Hereditary Cancer by Twitter Trackbacks for Raising Awareness of Hereditary Cancer « Ellyn Davidson’s Weblog [ellyndavidson.wordpress.com] on Topsy.com</title>
		<link>http://ellyndavidson.wordpress.com/2009/10/18/raising-awareness-of-hereditary-cancer/#comment-333</link>
		<dc:creator>Twitter Trackbacks for Raising Awareness of Hereditary Cancer « Ellyn Davidson’s Weblog [ellyndavidson.wordpress.com] on Topsy.com</dc:creator>
		<pubDate>Sun, 18 Oct 2009 15:14:54 +0000</pubDate>
		<guid isPermaLink="false">http://ellyndavidson.wordpress.com/?p=658#comment-333</guid>
		<description>[...] Raising Awareness of Hereditary Cancer « Ellyn Davidson’s Weblog  ellyndavidson.wordpress.com/2009/10/18/raising-awareness-of-hereditary-cancer &#8211; view page &#8211; cached  I’ve spent a lot of time in the past month thinking about hereditary cancer issues. Last Friday, I spoke to the Michigan Cancer Genetics Alliance about FORCE. And in between, I’ve had two FORCE... (Read more)I’ve spent a lot of time in the past month thinking about hereditary cancer issues. Last Friday, I spoke to the Michigan Cancer Genetics Alliance about FORCE. And in between, I’ve had two FORCE outreach meetings. In speaking to the MCGA, I communicated my concern with the lack of awareness of both hereditary cancer and the importance of Genetics Counselors in the process. Through my interactions with many of them, I know that they have similar concerns. They had some nice suggestions of various groups within Michigan that may help me take on this issue. I talk to women everyday who don’t know they are at risk and don’t know what to do if they are at risk. Clearly I fit in the “didn’t know I was at risk” category. We’ve come along way through organizations like FORCE and Be Bright Pink but we still have a long way to go. (Read less) &#8212; From the page [...]</description>
		<content:encoded><![CDATA[<p>[...] Raising Awareness of Hereditary Cancer « Ellyn Davidson’s Weblog  ellyndavidson.wordpress.com/2009/10/18/raising-awareness-of-hereditary-cancer &ndash; view page &ndash; cached  I’ve spent a lot of time in the past month thinking about hereditary cancer issues. Last Friday, I spoke to the Michigan Cancer Genetics Alliance about FORCE. And in between, I’ve had two FORCE&#8230; (Read more)I’ve spent a lot of time in the past month thinking about hereditary cancer issues. Last Friday, I spoke to the Michigan Cancer Genetics Alliance about FORCE. And in between, I’ve had two FORCE outreach meetings. In speaking to the MCGA, I communicated my concern with the lack of awareness of both hereditary cancer and the importance of Genetics Counselors in the process. Through my interactions with many of them, I know that they have similar concerns. They had some nice suggestions of various groups within Michigan that may help me take on this issue. I talk to women everyday who don’t know they are at risk and don’t know what to do if they are at risk. Clearly I fit in the “didn’t know I was at risk” category. We’ve come along way through organizations like FORCE and Be Bright Pink but we still have a long way to go. (Read less) &mdash; From the page [...]</p>
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		<title>Comment on Heading into Breast Cancer Awareness Month by Shannon</title>
		<link>http://ellyndavidson.wordpress.com/2009/10/04/heading-into-breast-cancer-awareness-month/#comment-332</link>
		<dc:creator>Shannon</dc:creator>
		<pubDate>Wed, 14 Oct 2009 16:38:53 +0000</pubDate>
		<guid isPermaLink="false">http://ellyndavidson.wordpress.com/?p=651#comment-332</guid>
		<description>Dear Ellyn, 

Wow, your blog is great- thanks so much for sharing!!! My sister has just entered remission from cancer and I am holding my breath for the next five years for clean scans every time. I ran into your blog because I’ve been increasing my research of breast cancer since my job has decided to partner with a breast cancer prevention organization. Have you ever heard of the Breast Cancer Fund, an organization devoted to exposing and eliminating the environmental causes of breast cancer? Which is amazing, as I don’t know of any other organization working on addressing the root causes of breast cancer. I work for a company called To-Go Ware and we provide non-toxic alternatives to eating on-the-go and support the stance that Breast Cancer Fund takes around removing products that contain toxins from our daily lives (mostly plastics). Just thought you and your readers would like to know that To-Go Ware is running the Together We Can “Beet” Breast Cancer campaign for the month of October, giving 10% of online sales to the Breast Cancer Fund. They are an amazing organization, doing vitally important work to educate folks about the toxins in our environment that are potentially causing breast cancer. I love that my and so many other companies are stepping up and supporting breast cancer research, prevention and survivors! And not just with kitchy, pink gear that is available only during the month of October, but things you can use every single day to increase the chance we have of avoiding all of these toxins in the first place. Let me know if you want more info for your readers. Have a lovely day today and continued great celebration of the strides made toward prevention and a cure for the remainder of this month!</description>
		<content:encoded><![CDATA[<p>Dear Ellyn, </p>
<p>Wow, your blog is great- thanks so much for sharing!!! My sister has just entered remission from cancer and I am holding my breath for the next five years for clean scans every time. I ran into your blog because I’ve been increasing my research of breast cancer since my job has decided to partner with a breast cancer prevention organization. Have you ever heard of the Breast Cancer Fund, an organization devoted to exposing and eliminating the environmental causes of breast cancer? Which is amazing, as I don’t know of any other organization working on addressing the root causes of breast cancer. I work for a company called To-Go Ware and we provide non-toxic alternatives to eating on-the-go and support the stance that Breast Cancer Fund takes around removing products that contain toxins from our daily lives (mostly plastics). Just thought you and your readers would like to know that To-Go Ware is running the Together We Can “Beet” Breast Cancer campaign for the month of October, giving 10% of online sales to the Breast Cancer Fund. They are an amazing organization, doing vitally important work to educate folks about the toxins in our environment that are potentially causing breast cancer. I love that my and so many other companies are stepping up and supporting breast cancer research, prevention and survivors! And not just with kitchy, pink gear that is available only during the month of October, but things you can use every single day to increase the chance we have of avoiding all of these toxins in the first place. Let me know if you want more info for your readers. Have a lovely day today and continued great celebration of the strides made toward prevention and a cure for the remainder of this month!</p>
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		<title>Comment on The Breast Cancer fight continues by lori b</title>
		<link>http://ellyndavidson.wordpress.com/2009/10/03/the-breast-cancer-fight-continues/#comment-324</link>
		<dc:creator>lori b</dc:creator>
		<pubDate>Sun, 04 Oct 2009 14:28:35 +0000</pubDate>
		<guid isPermaLink="false">http://ellyndavidson.wordpress.com/?p=645#comment-324</guid>
		<description>sending lots of good wishes to your friend. i was on a parp for 10 months and did really well on it. its a wonderful treatment for her to be a part of, and i hope for her success on it!</description>
		<content:encoded><![CDATA[<p>sending lots of good wishes to your friend. i was on a parp for 10 months and did really well on it. its a wonderful treatment for her to be a part of, and i hope for her success on it!</p>
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		<title>Comment on The Breast Cancer fight continues by Heading into Breast Cancer Awareness Month &#171; Ellyn Davidson&#8217;s Weblog</title>
		<link>http://ellyndavidson.wordpress.com/2009/10/03/the-breast-cancer-fight-continues/#comment-323</link>
		<dc:creator>Heading into Breast Cancer Awareness Month &#171; Ellyn Davidson&#8217;s Weblog</dc:creator>
		<pubDate>Sun, 04 Oct 2009 02:13:31 +0000</pubDate>
		<guid isPermaLink="false">http://ellyndavidson.wordpress.com/?p=645#comment-323</guid>
		<description>[...] a comment &#187;  In my last post, I wrote that it had been a long interesting week.  On Wednesday, just one day before the start of [...]</description>
		<content:encoded><![CDATA[<p>[...] a comment &raquo;  In my last post, I wrote that it had been a long interesting week.  On Wednesday, just one day before the start of [...]</p>
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		<title>Comment on The Breast Cancer fight continues by Twitter Trackbacks for The Breast Cancer fight continues « Ellyn Davidson’s Weblog [ellyndavidson.wordpress.com] on Topsy.com</title>
		<link>http://ellyndavidson.wordpress.com/2009/10/03/the-breast-cancer-fight-continues/#comment-322</link>
		<dc:creator>Twitter Trackbacks for The Breast Cancer fight continues « Ellyn Davidson’s Weblog [ellyndavidson.wordpress.com] on Topsy.com</dc:creator>
		<pubDate>Sat, 03 Oct 2009 18:51:34 +0000</pubDate>
		<guid isPermaLink="false">http://ellyndavidson.wordpress.com/?p=645#comment-322</guid>
		<description>[...] The Breast Cancer fight continues « Ellyn Davidson’s Weblog  ellyndavidson.wordpress.com/2009/10/ &#8211; view page &#8211; cached  It’s been a long interesting week and I finally have a moment to share. After my diagnosis, I was connected to an acquaintance that had just finished her journey. She became a mentor of... (Read more)It’s been a long interesting week and I finally have a moment to share. After my diagnosis, I was connected to an acquaintance that had just finished her journey. She became a mentor of sorts—supplying me with cute hats, sending thoughtful cards and calling or emailing to check in on me. (Read less) &#8212; From the page [...]</description>
		<content:encoded><![CDATA[<p>[...] The Breast Cancer fight continues « Ellyn Davidson’s Weblog  ellyndavidson.wordpress.com/2009/10/ &ndash; view page &ndash; cached  It’s been a long interesting week and I finally have a moment to share. After my diagnosis, I was connected to an acquaintance that had just finished her journey. She became a mentor of&#8230; (Read more)It’s been a long interesting week and I finally have a moment to share. After my diagnosis, I was connected to an acquaintance that had just finished her journey. She became a mentor of sorts—supplying me with cute hats, sending thoughtful cards and calling or emailing to check in on me. (Read less) &mdash; From the page [...]</p>
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		<title>Comment on Another great Breast Cancer 3-Day fundraiser by Kasey</title>
		<link>http://ellyndavidson.wordpress.com/2009/06/11/check-out-this-breast-cancer-3-day-fundraiser/#comment-320</link>
		<dc:creator>Kasey</dc:creator>
		<pubDate>Mon, 28 Sep 2009 04:21:18 +0000</pubDate>
		<guid isPermaLink="false">http://ellyndavidson.wordpress.com/?p=541#comment-320</guid>
		<description>There&#039;s a ton of events going on for Breast Cancer Awareness Month! It&#039;s great! During the month of October, the party supply company ShindigZ is offering personalized Breast Cancer Awareness banners with the pink ribbon symbol for just $1. Plus, proceeds go to the Susan G. Komen Foundation. They&#039;re perfect for events! The banners are available here: http://www.shindigz.com/party/1-Breast-Cancer-Awareness-Banner.cfm and the code is:SZBCAM
Thought you might be interested!
Kasey</description>
		<content:encoded><![CDATA[<p>There&#8217;s a ton of events going on for Breast Cancer Awareness Month! It&#8217;s great! During the month of October, the party supply company ShindigZ is offering personalized Breast Cancer Awareness banners with the pink ribbon symbol for just $1. Plus, proceeds go to the Susan G. Komen Foundation. They&#8217;re perfect for events! The banners are available here: <a href="http://www.shindigz.com/party/1-Breast-Cancer-Awareness-Banner.cfm" rel="nofollow">http://www.shindigz.com/party/1-Breast-Cancer-Awareness-Banner.cfm</a> and the code is:SZBCAM<br />
Thought you might be interested!<br />
Kasey</p>
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